Founded in 2016 by RA patient organizations and leaders from 18 countries, the Global RA Network was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with RA around the world. Arthritis Consumer Experts (Canada) serves as the Network’s secretariat.
This website is the Network’s on-line meeting ground and a place to share its ongoing work and educational and informational resources with RA patients, care providers and governments.
The Global RA Network’s first initiative was to conduct a survey on patient experiences of RA models of care. To learn more, click here.
Global RA Network Members
Austria Tanita Wilhelmer and Mareen Schoenfelder - Österreichischen Rheumaliga/Jung und Rheuma
Belgium Jeannine Engelen and Mireille Verscheure - RA Liga
Brazil Giselle Biancardini - ACREDITE - Amigos da Criança com Reumatismo
Brazil Priscila Torres - Grupar/EncontrAR
Canada Cheryl Koehn, Kelly Lendvoy - Arthritis Consumer Experts
Colombia
Creete Katerina Koutsogianni - National Federation of Patients, Caregivers & Friends of Children with Rheumatic Diseases
Croatia Mišo Matana, Nenad Horvat – NGO Remisija
Cyprus Andri Phoka – Cyprus League for People with Rheumatism
Denmark Matilde Kristensen, Tanja Tofte Thomsen - Danish Association of Young people with Rheumatism
France Françoise Alliot-Launois - l’AFLAR (French League Against Rheumatism)
Hungary Andrea Domján - Arthritis Betegklub
Hungary Tímea Tófalvi, Gábor Tóth - Reumabetegek a Célzott Terápiáért Egyesület
Ireland Gráinne O'Leary - Arthritis Ireland
Israel Maytal Maoz, Hily Wollach, Michal Nudel - Mifrakim Z'eirim
Italy Antonella Celano, Anna Marinella, Andrea Tomasini – APMARR
Italy Sara Severoni, Sylvia Tonolo – ANMAR
Latin & South America Gonzalo Tobar Carrizo – ASOPAN
Netherlands Gerardine Willemsen- de Mey - President National Association ReumaZorg Nederland
Peru Karla Ruiz de Castilla Yábar - ESPERANTRA
Romania Rozalina Lapadatu - APPA
Russian Federation Natalia Bulgakova – Nadezhda
Serbia Nenad Nedić – ORS (Association of patients with rheumatic diseases of the Republic of Serbia)
Slovenia Petra Zajc – Slovenian Rheumatism Association
Southern Europe Andri Phoka – AGORA
Spain Eulalia Alcaide Cornejo, Antonio Torralba – CONARTRITIS
Taiwan Ling-yuan Chang – Rheumatoid Arthritis Aid Group
United Kingdom Clare Jacklin - National Rheumatoid Arthritis Society
United States of America Tiffany Westrich-Robertson - International Foundation for Autoimmune & Autoinflammatory Arthritis
Ukraine Kateryna Kodnianska – Joy of motion
Uruguay Alfredo Toledo - Fundación Salud Dr. Augusto Turenne
